SCDAA, Oklahoma Chapter
Joined the
Sickle Cell Disease Association of America, Inc. for
ADVOCACY D
AY ON CAPITOL HILL
Washington,
DC
March 24, 2009
8:30 a.m. – 4:30 p.m.
SCDAA, Oklahoma and other Member
Organizations outlined our request for full funding and reauthorization of the
Sickle Cell Treatment Act (SCTA) programs, during the Fiscal Year 2010
appropriations cycle.
OUR KEY MESSAGES:
Thank you for
supporting the Sickle Cell Treatment Act (P.L. 108-357).
The SCTA allows states to
receive federal funding for patient counseling, educational initiatives and
community outreach programs. Patients can also receive federal matching funds
for sickle cell disease-related services under Medicaid. The SCTA also sets the
groundwork for the development of 40 sickle cell treatment centers located
across the country and establishes a
National
Coordinating
Center
for Sickle Cell Disease. The SCTA expires in 2009 and remains seriously
underfunded. However, as more and more individuals and communities learn about
Sickle Cell Disease, the demand for more research and outreach increases.
More information about the Sickle Cell Treatment Act and more about the key messages that will be discussed can be found here.
New photos have been added
here.
Gabriel George, right, met
March 24, 2009 with
President Barack Obama in
the
Oval Office to talk
about
sickle cell disease. The National Poster Child
for the
Sickle Cell Disease
Association was accompanied by his mother,
Shelly. Obama was funny and
joked about things, Gabriel said.
